Overnight Oxygen Study Update

Thursday, November 19, 2009

We are 2 hours into our oxygen sleep study and we've already had to turn Darbi's oxygen back on. :( I'm so bummed. She's not ready to come off of the oxygen. When we started, she was awake and sating in the high 90's which is good and normal. So we took her oxygen off - still sating in the 90's - then she fell asleep and slowly started dropping off into the high 80's... then mid 80's... then low 80's. The lowest she reached, that I saw, was 78. I'm glad that we haven't had a saturation monitor these last 7 months because I could go crazy just staring at it making sure she keeps in the high numbers. I was watching it for about 10 minutes when her heart rate started to drop. From our time in the hospital, I knew when the numbers were becoming dangerously low so we decided to call our doctor's office after hours clinic. Unfortunately, they closed at 10 and it was 11:15. We then decide to phone up our old friends at the NICU. :) They remembered who we were and told us that we should consider this an "emergency" and go ahead and call our doctor's office emergency number. I knew that her numbers were getting lower and lower but because of this test, I didn't know how low was considered "acceptable". The nurse that we got a hold of said to put her back on the O2 and keep the test going so they can see the difference of her being off the O2, then on the O2 while asleep. We turned her up to 1/4L (the amount she was on when she was discharged from the hospital in May) and it took her about 5 minutes to get her saturation levels back into the 90's.

So. She still needs the oxygen. I'm bummed but a little relieved. I want it close this winter. If she didn't need it now, I wanted to at least keep a few tanks around in case she got sick. It would be nice to maybe take it off during the day and only use it at night but that will be the Dr's call. I have to go in on Monday to get her booster H1N1 shot so I will get the update from the doctor then. Ugh.

Play!

Tuesday, November 17, 2009

Clint has been looking forward to tonight for about 2 weeks! Him and his brother went to see Play! a Video Game Symphony up in Salt Lake. They play music from a ton of different video games and since they both grew up with every gaming system known to man, they knew almost all the songs. NERDS. :)

Earlier today, Clint and I were trying to plan for the evening and he was worried about the dress code. He jumped on the website and it said "costumes welcome" which then spurred a 2 hour search through the DI, Savers, and Harbor Freight for items to create the perfect Mario/Luigi costumes. It was SO FUN. The costume planning, I mean... I didn't go to the concert. I'm not a nerd. :) I made their black mustaches, yellow buttons, and hat logos from cardstock I had laying around the house. They said only a few others were there in costumes and a few people even asked to take their pictures with them! HAAA!!! They are so funny!!







Apparently Mario traded Yoshi in for a Civic..


Poor Darbi was so afraid of him!

New Stats

We went to the Doctor today for her regular check up and these are her new numbers:

Weight: 13 pounds 11 ounces
Length: 25 inches
Head Cir: 16.75 inches

Our pediatrician has a computer that does all the math for the percentile and for her actual age (10 months 16 days) she is in the following percentiles:

Weight: 0.03%
Length: 0.19%
Head Cir: 5.26%

HA! She's FINALLY on the actual age growth chart, just barely. We met with the NP because our doc was out of town. She's super super nice and I actually was glad she was there this time. Our Dr. has not been in any hurry to take Darbi off of the oxygen and she suggested that we try getting rid of it now! I'll admit, I'm not too keen on getting rid of it, but if she really doesn't need it, it would be nice to not have it. So.... We will be doing a 24 trial run with a machine similar to the ones she was hooked up oh-so-long ago in the hospital. The oxygen company will then send the results over to the doc where he will review them and make a final decision. I'm hoping before Thanksgiving!!! I should be getting a phone call in the next few days to schedule the trial run with Praxair. I don't really want to drag 5 tanks down to AZ with me!

She gave me some tips on how to help her sleep through the night better. When she wakes up, I'm such a push over and feed her every time. :( It's just so easy.... I'm terrible. So I need to stop doing that. Other than that, the NP was super happy with how D is doing so far!

High Fives

Sunday, November 15, 2009

We taught her how to give high fives!! She's really gentle about it and it's SO stinkin' cute! Every time I play this video for her she smiles really big when we all shout "Yay!"

video

I put our tree up! Blame Darbi.

I know I know.. Every year, after Halloween, I boycot the Christmas music radio stations and refuse to shop for Christmas decor or even look at it until after Thanksgiving.. but this year, I couldn't resist and it doesn't bother me!! This is also a good time to announce.. I'm going to Phoenix this Christmas and I'll be there FOR A WHOLE MONTH!! :D I'm SOOOO excited about it. So I wanted to be able to enjoy my Christmas tree in my house before I leave. My bro is flying up the first weekend in December to drive down with me and D and Clint will fly down a week later, after finals are over! I haven't had Christmas for FOUR YEARS with my family. It's gonna be a good one!

First Snow

Saturday, November 14, 2009

Today was the first snow since Darbi has been home! Give me till after Christmas and I'll be cranky about all the snow but for now, it's exciting! She's too small to go outside and play in it and there wasn't enough to even do that but she was fascinated by it.


Ignore my goofy bangs in this pic.. I hadn't done my hair yet.. who am I kidding.. I still haven't done it...

She looked so cute while I was out running errands today! I love love love her in a beanie!

Holiday PJ's

Newest Addition to Clutter the Floors of Our Tiny Apartment

Thursday, November 12, 2009


She is so freaking cute I can't even stand it!!!! You have to trust me.. it's even cuter in person!! She wasn't sure about the Bumbo at first but I think she'll like it.

The Hair is There

It's slowly coming in!
You have to click the pic to get the full effect.


Great Grandma's Chair

Tuesday, November 10, 2009



She's still looking kinda small.. Our nurse came by the other day and weighed her. She's 13 pounds 8 ounces and 10 months old.. She stil HATES tummy time but will actually lift her head and sometimes smile. However, she doesn't use her arms AT. ALL. She doesn't get it. So we're going to try sitting up by resting her on her hands like a little monkey to see if she gets it. It makes me laugh when I set her on the couch or in a chair and she starts to tip.. she doesn't try and stop herself but just turns her head to the side and falls. She always smiles while she does it because I'm laughing at her. It's not encouraging I know but she's just so funny!

Copycat

Sunday, November 8, 2009

Sorry we have been a little MIA this week. We've been making some changes to Darbi's sleep patterns and it's taking a toll on my sleep patterns. She's up every 2 hours! Also... she's not really getting the eating-rice-cereal thing so it's hard to make her try it every night. I know the taste is an issue but with her it's more about technique problems. Any tips would be appreciated...

Here's a cute video of her from about a week or so ago. She's starting to imitate us more and she has to be in the right mood for her to want to do this but it's so dang cute when she is! Sorry the video is turned the other way. Clint was taking video and I guess I haven't taught him proper taking-video-with-the-camera technique yet. It's on my list. Promise.

video

Aaannnd she's awake again... ugh.

Happy Halloween!

Saturday, October 31, 2009

I know we didn't go anywhere and she was only seen by me, Clint, Dad, and Jed... and she was only dressed up for maybe a total of 7 minutes but she was the cutest rhinestone cowgirl I've ever seen! Oh man she's a cute one and she's got Grandpa Blair wrapped around her finger!