Take a deep breath.. Are you ready for this??

Saturday, February 28, 2009

We are OFF of the ventilator... YES I said off. COMPLETELY. Can you believe it??? She was on the regular ventilator for one day. She's A-MAZ-ING. The nurse called me this morning and said get in here because you've got another big day ahead of you!! We have graduated to the CPAP. I'm not a huge fan of the CPAP because it makes her face all scrunched and she looks like an elephant and she has to wear this awesome head gear thing that makes her look like a wrestler from the '70's. BUT now she has nothing down her throat which means we can finally hear her cry! Her voice is real scratchy right now but it will get better and she'll be howling like one of your own.

So this CPAP is a little machine that has 2 spokes that go up her nose a little bit and it just pushes air into her lungs. She takes her own breaths but this helps to push her lungs a open a little bit more. If she doesn't tolerate this then they will have to intubate her again and we will be back on the vent. Right after they tried the CPAP, she was not having it so they quickly decided to try skin to skin to see if that would help her calm down. It totally did and I had her on my chest holding her for an hour again! It was awesome! Hopefully she's recognizing my heartbeat and my smell and knows that I'm her mommy.. She seemed pretty happy.

Don't worry.. there were no nip slips. These photos are rated 'G'. :)

Here's a video of my growling elephant baby. They were adjusting the tube in her mouth and you can kind of hear her cry.. It sounds like a growl but she will soon get her voice back and she will sound better.

BEST DAY EVER.. really!!!!

Friday, February 27, 2009

Best Day Ever Reason #1

Today we got a freezer... FOR FREE!!! We found an ad on KSL for a 10 cubit foot freezer so Clint called them this morning. It's only 3 years old and is perfect! They had someone coming around 3 today to look at it and Clint said we would come over right now. They said yes.. and we loved it.. and it's ours!! Now we have a place of our own to store the ridiculous amounts of milk I'm making!

Best Day Ever Reason #2

Clint had a job interview today... and HE GOT THE JOB!!! He starts Monday and he will be a parking attendant for UVU. He is the bad guy that gives out the tickets to all of those dumb people who can't read parking signs. I think he will find this job very satisfying and I'm excited for the stories he will come home with! It works perfect with his schedule and he will be home every evening to hit the hospital and hang out with me and Darbi.

Best Day Ever Reason #3

Darbi was moved from an oscillator to a regular ventilator! An oscillator is usually used for the really small preemies whose lungs are extremely underdeveloped. It's much more gentle on their lungs and pumps about 600 breaths a minute into their lungs which actually keeps their lungs almost always open. It prevents them from sticking together and becoming more damaged. Now because she is older and her lungs are stronger, she is on a regular ventilator which pumps in breaths just like normal. She can still breathe on her own with this machine but it's there to help when she forgets to breathe... So this means.. I got to hold her FOR REAL today!! Like really really hold her! My nurse said from now on, as long as she can handle it, I can hold her twice a day for about 30 minutes each time. The reason being, her body has a hard time staying warm outside of the isolette. She did SO well while I was holding her, they gave me *bonus* time with her and I held her for an hour... An hour of sweet bliss.. And she loved every minute of it! She did not fuss at all and was absolutely content to just sleep in my arms.. I'll be going back tonight to hold her again. It would be Clint's turn but he had a cold last week and wants to be for sure for sure he has no more sick germs on him. We will be starting skin to skin care as soon as she's for sure better from whatever infection they think she may have.. When we start that, we can hold her for up to 1.5 hours at a time!

Yesterday made the start of this weekend look a little bleak but now... I'm so happy! They weren't kidding when they talk about what a roller coaster ride the NICU is. From a little low to way high is the only way to go! This will probably help her to start growing faster.. I'll be cheering her on from a rocking chair with her in my arms!!

Our first real family photo

Wait... did you just say PICC line??

Thursday, February 26, 2009

Our sweet girl has decided to rattle the cage again.. She sure does keep us on our toes.. She was doing so good.. the only thing unnaturally going into her was her breathing tube and her feeding tube. NOW.. we are back to a PICC line, an IV, a breathing tube, and a DRAINAGE tube... and NO feeding tube. :( One of her nurses was saying the other day she is looking a bit pale and that could be a sign of infection. They've done blood tests but her white blood cell count has been normal and not anywhere near the highs we would see with an infection. She not low on blood so she's in no need of extra...

What is wrong with her?? Well.. we don't know. They've done a blood culture and results will be back tomorrow night, antibiotics have begun and will continue for who knows how long, and they have stopped her feedings because her girth (the measurement around her belly) has increased by 1.5 cm in about a day (I think..). The x-ray showed her intestines were full of air and super swollen. They've stopped everything going in and she's getting suppositories to clear everything that might be coming out. The drainage tube looks just like her feeding tube and it goes to the same place but it is suctioning out everything in her tummy to make sure we've got it all. We are trying to avoid any perforations in her bowels by doing all of this. I would DIE if we got sent back to Primary's. We finally get her closer to home and all that work to just get sent back up there would be devastating. We are thinking the reason for all of this is because we went to fast at increasing her feeds. Once they fortified her milk to 26 calories per serving, she started spitting up a TON. The 26 cal would help her gain weight faster but is a bit harder on her gut.

Soooo.. Where does that leave us? We are going to wait and see how her body responds to us cleaning her out and we will watch her x-rays and when things start to look more normal, they will start feedings again.. but VERY slowly. Hopefully she's ok with the "infection" they think she has. The only thing that worries me is that it is not an infection but possibly something worse. I have no idea what worse is but we are praying that she's just a little overstuffed and needs a little break from food for a day or too.

The good news? She weighed 1155 today! That's 90 grams she gained today! It may not be super accurate because she still needed to empty her bladder but I'm going to pretend it's all real. 2 1/2 pounds!

Smilin' fool

Wednesday, February 25, 2009

My long-fingered monster

Eye exam #2

This time.. I wasn't there for it. One time was enough but then once again, NO ROP!! SO soooooooo great!! I know this won't make sense to most but for those who know a bit about ROP, she is currently in the middle of Zone 2 and the Dr. said he's thinking maybe 3-4 weeks and we are completely out of the woods as far as ROP goes.. I don't want to jinx it but she's doing amazing!

Story of my life...

Tuesday, February 24, 2009


A few pics of my sweet girl

Her scar from her PDA surgeries

A view without the tape

My cross-eyed beauty

Now what's cooler than bein' cool? ICE COLD!!

Monday, February 23, 2009

For the last few weeks, it's been fairly easy to be optimistic about everything that is going. I don't exactly know how I've been able to deal with it all but I have. I know the Lord has blessed our family and is a big part of why we have been so strong but lately it seems like it's all starting to hit me.. Like what is really going on. Darbi is still doing amazingly well but I mean c'mon. We have a baby!! We aren't even ready for this!! You walk into my home and nothing has changed. Clint and I still do basically the same things when we are home but with the added frequent interruption of the pump and also lack of freezer space. By the way, anyone know of a good meat locker? How much do those things run? We're running out of freezer space BAD. I've had some plumbing issues on my part these last 2 days. I can't seem to be stable and anything will set me off. I had to run to the store last night and get Clint an "I'm sorry I'm so emotional lately" treat. But the good thing is the doctor took me off of my BP meds today which I guess means I'm subconsciously handling all of this stress well! So it seems... We will check in 2 weeks and hopefully it's still low. I think I have found the real trick though... Give me a Dr. Pepper and I'm a happy camper... until it's gone. ;) And Darbi is up to 2 pounds 5.5 ounces! (that .5 is important...)

I know the title of this post has nothing to do with this post... I've just got that song in my head and it's driving me crazy!!! And yes Becky, I am thinking of you.. dancing to this song. :)

She's happy and she's pooping!

Sunday, February 22, 2009

The last few days have been pretty quiet in Darbi's neighborhood. Every time I call, she's happy, she's eating, she's pooping, and she's growing! Tonight she weighed 1010 so she has broken the 1000 mark! 2 pounds 4 ounces! She does still have some lung issues that we are dealing with. This morning, on her x-ray, the doctor noticed some atelectasis in the upper portion of her right lung. This happens often in micro preemies where the lung will collapse itself temporarily so they have positioned her with her right side up so as to help inflate that lung as much as possible. Her lung will require some extra suctioning and a little more pressure being pumped into her lungs but nothing too serious. She also has osteopenia precautions on her which means her bones are extra sensitive to breakage. They are doing some blood tests to see if she has Ricketts Disease. Also not too serious.. She will just need a little extra Vitamin D in her diet and she'll catch up soon.

Yesterday I was changing her before they weighed her and she DEFINITELY filled up her diaper... I've never seen that much come out of her! I was so proud and disgusted at the same time! She is getting 20cc's every 3 hours at 26 calories per serving so it does have to go somewhere.

We actually heard her for the first time yesterday too!! I've never heard her make a sound and she was making really really quiet grunting noises yesterday. The reason we can't hear her is because of the breathing tube she has down her throat but the respiratory therapist said that she is starting to grow out of the tube and there may be a little air leak. No big though.. It was so sweet!

My mom flew into town and we got my scrapbook/Clint's "man cave" organized so now I can get really crafty! Thanks Mom! And tomorrow is my 6 week "hoo-hoo doctor" appointment. Hopefully I can get completely off of the BP medicine. I'm ready to not have to see the doctor for a while (at least until Darbi comes home.. We'll be there often I'm sure.)

Clint changing her diaper for the first time.

Caffeine addict

Thursday, February 19, 2009

We're up to 995 grams! Almost into quadruple digits! 2 pounds 3 ounces. Her PICC line came out today which means she has nothing poking into her skin anymore. All we have is a feeding tube, breathing tube, and leads stuck to her skin (heart rate monitor, temperature taker, etc). Now all of her nutrition is coming strictly from my milk and any medicine she gets is mixed in with the milk. Her only medicine is some kind of sedative (for when she's fiesty) and CAFFEINE!! I knew she was having withdrawls.. I lived off of Dr. Pepper when I was pregnant and she's had a caffeine headache since she was born, I'm sure. No.. The caffeine is really to help her respiratory system. Kind of helps jump start her into breathing on her own.

Now look at some pretty pictures taken by my friend Becky. Too dang cute.

2 pounder!

Day 3

Day 50

She's officially DOUBLED her weight!
930 grams = 2 pounds 1 ounce

She has his smile... sorta

Wednesday, February 18, 2009

Eye Appointment #1

No signs whatsoever of ROP!!! She will continue to get checked by her eye doctor every week because once ROP does start to develop, it progresses very rapidly. BUT so far so good!! The test is not an easy one to watch but I braved up! I watched it.. I'm sure if I could actually hear her crying it would have been worse. She did really well because she was doped up on meds so she won't remember it.

Dreamin' of the Darbster!

Clint left for school today around 8 and I woke up to pump.. Starting to become a route for us which is nice. Since I'm home now, I've got a list of things that need to get done; hang up clean clothes, call the insurance company, do dishes, etc. So I had a lot to do for when I finished pumping. What did I do though?? Go back to bed. I'm terrible. But, I need my sleep! :) Simple as that. So when Clint called me at 11 ( I know I know... I won't sleep that late again!) I was scrambling to make the house look like I had been up for 3 hours and did something. :) I threw my hair up, put on some jeans, moved the dishes around in the sink (clever little trick which I'm sure does nothing and he didn't even notice.. hehe) and started to pump again. Clint comes home and sees through my little ploy to make it look like I got a lot done. Oh well. :) At least he knows the real me.

Anyway, I had a dream while I was sleeping and Darbi was in it! She was like 5 years old and was DANG cute and was absolutely fine! We were on vacation in Mexico with my family and she had the biggest fro of curly blondish hair! She wanted to go get it braided and beaded down by the beach so we let her. (I hope she didn't get lice.. I don't think I'll let her do that in real life. Gross.) Anyway, my mom was taking pictures of her and I goofing off and they were so cute! She said something to me and I totally corrected her English!! I am so going to be that mom that makes her kids speak correctly! HAHA! It was such a good dream!

Clint and I are off to the hospital. We may hit the 2 pound mark today! Cross your fingers!

Daddy's turn

Tuesday, February 17, 2009

Tonight it was Clint's turn to hold her. His giant hands fit right under her body! She weighed 875 grams tonight! 1 pound 15 ounces!!

Here's a video of Darbi with her first experience with her binky. You really don't have to watch it. I probably find it more fascinating than anyone! So here it is for my enjoyment! :)

Home Sweet Home.. for now

Monday, February 16, 2009

We were welcomed into the NICU today with open arms! We really feel like we're home now! For the next 3 months at least. Our nurse today had watched Darbi only once before we were sent up to Primary and she remembered us and was so happy we were back! Other people I had only met once remembered us and wanted to know how Darbi was doing now. They remembered me even though the last time I saw them, I was in nasty hospital gowns, undone hair, and about 25 pounds heavier. It was a really good feeling to know how much they cared. Her nurse tonight said that Darbi was the smallest baby she's ever taken care of and she was terrified! Now she looks so much more sturdy than she did a month ago. It's so nice knowing how close she is to us and that if for some reason I can't sleep in the middle of the night, it's just a few minutes drive and I can be there with her.

We arrived at the hospital tonight and I was able to help with her bath and weighing her. For both, I was able to be the one to lift her up while her bedding was changed and while we weighed her. I GOT TO HOLD HER FINALLY!!! She's so tiny! She feels like she weighs even less than she looks! I told the nurses and they were so shocked that I had never held her. After we were done, they asked if she liked sucking on a binky and I said that we've never tried... Once again; SHOCK. So they went and grabbed the smallest one they had. It's just barely smaller than her head! It fit in her mouth nicely and she really liked it! It was so cute.. she would suck on it and fall asleep for a minute, wake herself up and start sucking again.. Today was an awesome day and we are SO SO SO grateful that we could have her nearer to home.

She is on her way!!

She's not really being discharged but she's being discharged from Primary's nonetheless!

Great great news!!

Sunday, February 15, 2009

Darbi is doing SO well right now! I'm a little afraid of updating on all of her wonderful accomplishments for fear that soon she will undo it all and take a few steps backwards. I'll take the chance. We are so proud of her! She sailed through both of her heart surgeries and is recovering nicely. Her blood pressure has become stronger (because of the vein closing) and her oxygen need has decreased a ton. She got as low as 24% yesterday (consistently... even 22% for a few minutes). We breathe 21% oxygen. They stopped her Nitric Oxide treatment this morning and she seems to be doing great without it. The reason for it was to help prevent any more damage being done to her lungs (which resulted in her Chronic Lung Disease). She's got her first eye appointment coming up soon and we will find out how they are developing at that point. Let's not worry about it until then though. They have started to increase her fluids and now that her PDA is closed, she can have a lot more. More milk = more calories!! The nurses tried to explain to me how much more weight she will gain now and this is how they did it so I would understand: before the PDA surgery, she was gaining about 1% of her weight a day, after the PDA surgery, she will be gaining about 15% of her weight a day. That's HUGE!! I'm going to have a fat baby soon! Ok, maybe not soon, but fairly soon.

BUT, the big news... as long as Darbi does well.. they will be sending her "home" tomorrow!! Not home home.. but home to our referring hospital. SO great! She will be closer to us and I can finally keep my house clean and not be spending so much on gas! Brenda, one of our fave nurses from Utah Valley, was working up at Primary as she is working on getting her Masters, and on Thursday I asked her how soon we could get Darbi back down there. She said she would bring it up in rounds the next day with the Doctor and she called me Friday at 11 with the great news!! She kinda felt bad because I got WAY excited but this all depends on how Darbi does.. so far so good! We just have to get through the night now!

A gift card well spent... hopefully.

Saturday, February 14, 2009

I have finally spent my gift card to Barnes & Noble! I'm really excited about this book too. I have spent so much time researching different books and reading reviews (because I don't spend money on just ANY book.. it has to be THE book..) and all of that went down the drain when I read this interview with Christopher Moore. I was so intrigued that I went out and picked up A Dirty Job. When I saw the title of one of his books.. I knew I had to at least give this guy a shot: "Lamb: The Gospel According to Biff: Christ's Childhood Pal" Biff?? Christ's best friend growing up? BIFF?? Really? I've GOT to know more. He writes comedic fiction and I find that very interesting because it takes a skilled writer to be able to make people laugh simply through their writing. It's easy for comedians and actors to visual portray clever writing but to rely solely on the imagination of your readers and have so many of them find you funny, I think, is talent.

Anyway, the reviews were all great so we will see... Thanks for everyone's recommendations though! I've got a list going... It will keep me busy for a while.

Darbi is doing great! She's getting fluids, gaining weight.. being a baby. She had her arterial line taken out permanently which means more milk and more calories! We may have some good news coming Monday but I don't want to jinx it.. I'll hold off. :)

Diaper upgrade!!

Thursday, February 12, 2009

Proof that she really is growing!! They moved her to the new size yesterday! The small diaper on the left is used for micro-preemies under 2 lbs. The one on the right is used for preemies 2-4.5 lbs. The new ones are actually extremely large on her but the small ones are just barely too small.

Ultrasound reports

Wednesday, February 11, 2009

Radiology reports: brain ventricles are the same! No change (which is good!) -- therefore -- the giant head growth is REAL growth!! We're on our way to a bigger baby! They will continue to measure her head every day for the next week just to make sure and we will have another ultrasound next week but I'm confident that this is just catch-up growth. I mean, she is a 6 week old baby. 1 pound 12 ounces isn't gonna cut it!

She looks like she's flipping me off in this picture..

Crew's Bustin' Out

Congratulations little buddy... Someday it will be our turn!!

A little bit of weight gain!

Tuesday, February 10, 2009

I wasn't going to post anything today because it was pretty uneventful but after my work meeting tonight I called Darbi's nurse and she has some awesome news for us! Darbi is at 800 grams!!!! Last I knew was before her first surgery and she was somewhere around 690 grams. She's almost 1 pound 12 ounces and has almost doubled her weight since birth! EC-static!!!

The nurse had some unofficial results on the brain ultrasound today: the ventricles in her brain are *slightly* larger. What does this mean? BEATS ME. Doesn't sound so good and they are now measuring her head every day instead of once a week to make sure it's not swelling up. I will know more tomorrow and hopefully her ventricles are just bigger because her head is bigger because SHE'S 800 GRAMS NOW!! Keep praying for her.. we appreciate every single one and I know they are working!

Want to see something cute? Check out this little guy.. We met these friends of ours in the NICU and they are going home soon! Isn't he so sweet? Like a little stuffed animal in that car seat. I can't stop looking at this picture!

Surprise surgery today!

Monday, February 9, 2009

They called, they did it, we're done!! I got a phone call from the nurse saying that the x-ray showed her heart was enlarged again and so the cardiologist decided to do the surgery today! At 1:00 they called me and said that he would be done with another surgery in an hour and then it would be Darbi's turn! The surgery went well. They put another clip on her heart and now she has 2 but now the vein is closed. At least that's what they said. I'm sure they will do another echo tomorrow to double check. It better be closed...

She is stable right now though and she did really well with the surgery. The nurses are actually really surprised that her oxygen need is so low. I had a little hiccup with my blood pressure this weekend and it got a bit high but we're over that and it's back to normal. I can total see how good news makes it better.. with the surgery going well it came right down!

Other news: Darbi gets the perimeter of her head measured every Sunday night to make sure it's not growing too fast or swelling. February 1st it measured 21.5 cm and yesterday it measured 24 cm. Normal growth in a week is .5 to 1 cm. Not so good. We are worried now about there being excess fluid in her brain or possible enlargement of the ventricals due to her brain bleeding. They will do a head ultrasound tomorrow to see what the reason for the swelling is. Hopefully it's just a growth spurt.

And so begins the roller coaster ride...

Saturday, February 7, 2009

They did say our stay in the NICU would bring both ups and downs... Here's the down: The PDA STILL didn't close with surgery. Her PDA was much larger than they thought and the one-size-fits-all-PDA-clamps did not fit. The PDA is now only open a small bit and the surgeon said that about 50% of the time, the PDA will close on its own. Blah, blah, blah, I've heard this before. Now we wait until this starts to affect her body AGAIN and we will continue to do echos on her heart and will probably end up doing surgery AGAIN in time. How much time you ask? We don't know.. The end was in sight! Not really the end but the end of driving to Primary every day.. and the beginning of keeping my home clean because the hospital would be so close. Someday we will be back down here. But for now.. we will endlessly be here at Primary. The good thing about all of this is that they have started to give her milk again so she's not so hungry! As soon as they gave it to her, her oxygen need came down dramatically. She was so happy she got milk. Also, her blood pressure is MUCH better because the hole is mostly closed instead of wide open. So the plan now is to wait.. wait.. and wait some more. At least she is stable and we are grateful that this little PDA issue is all we have going on. Things could be worse and we are so happy they are not.

Surgery is done!

Friday, February 6, 2009

I got a call last night around 11:00pm saying they were going to push her back AGAIN but only to the early afternoon. So I slept in a little and got another phone call at 8:30 this morning saying they were ready to do the surgery right then! I was so excited. By 9:30 when I got there, they were done and she was passed out. They've been monitoring her very closely and will continue to do so for the next 48 hours. Her blood pressure has gotten better and all of the labs they've done on her are coming back great. She's doing SO good! Now that the PDA issue is past us, they can start giving her more fluids and she will gain weight.. like 10x faster than she was before. We are so excited! Here is where the incision was made. Usually they collapse the lung, put a chest tube in and and then go in and fix the heart. The doctor was able to just move her lung to the side without collapsing it and there was no need for a chest tube. So now she's just sleeping and healing and hopefully within a week or so we can get back to our home hospital! We've got our fingers crossed.

It's a no go.. for today.

Thursday, February 5, 2009

No surgery today. :( We were all ready for the surgery team to come up (since the surgery is done at the bedside) and they didn't come. Nothing is wrong with Darbi. Her surgery just got moved until tomorrow morning at 7:30am. There was a heart transplant that needed to be done which took precedence. We made sure they *promised* we won't get bumped again tomorrow.

SHE'S a HER.. sheesh.

Wednesday, February 4, 2009

I am spending the evening getting my craft on.. Project #1.. It's a little sloppy but I may hang it by Darbi's isolette. All the doctors and nurses keep referring to her as "he" and I have to keep correcting them. She does have a blue blanket on top of her bed though.. They will need to change that. At least it's better than them calling her "it" which surprisingly enough, has happened a number of times. SHE. HER. NOT HARD!

Please keep my baby clean

Surgery is still a go for tomorrow. I'll get a phone call after 5pm today letting me know exactly when. She weighed 700 grams yesterday and hopefully after this surgery she'll just take off in the fat gaining rocket.. Fat gaining rocket?? Where do I come up with this stuff?

Her arterial line in her arm went bad on Monday and they haven't replaced it yet. It was in the left arm near her Picc line. So, when the arterial line was taken out, there was blood that got on her arm that apparently didn't get all cleaned up. Then, they taped it all up with unneccessary tape which ended up being too tight and was making her pinky finger swell up and turn all red. I said something today and the nurse said she didn't notice it and decided to change the dressing right then, which I was grateful for. I wish it was taken care of in the first place though. It had to be done very carefully though so as not to mess up the placement of the Picc line and an x-ray was ordered to double check the placement later. Seems like a lot to have to do after the fact when if it had been done correctly the first time, all could have been avoided. Whatever. Let's get this PDA healed, grow a bunch, and come home!

The ugly mess of tape and dried blood :(

Changing the dressing

Clean, happy baby!

I've got about 20 pictures with her sleeping where her hand is just sitting like that with one finger pointing out.. Weird kid. :)

We have a date...

Tuesday, February 3, 2009

Surgery is scheduled for Thursday! That's pretty much all I got out of them today. Tomorrow I will talk with the doctor more in depth about all the details but it's a go for Thursday. I left a little early today because I was so tired and tomorrow will be a long day. I don't know exactly when the pre-op team will come talk to me so the plan is to get there early (9ish) and stay until I know everything.. and lunch is over. :) Free lunch Wednesdays!

Darbi is doing really well today! Super stable and her oxygen need was as low as 27 today! So good!! As soon as this surgery is over, hopefully, she'll start gaining weight much faster.

So on the way home today I stopped at Barnes & Noble to plan out how I will be spending my gift card. I LOVE how that store smells. You can smell the books a half a second before you walk through the double doors and the air from inside the store blows all your hair away from your face as you walk in. I LOVE IT! Walking into that store is so dramatic to me.. as should it be. It's an awesome store! So I'm way particular about books that I buy. If I'm going to buy it, it better be a dang good book that is going to be read many times. I'm all for owning the classics (and by classics, I mean any book that I like...). I won't just go out and buy a book based on it's description alone. It has to be one I've read before (because I've borrowed it from someone else who has bought it) or one I know will be good based on a review from someone who I know has good taste in books. So.. of course.. I didn't get anything today. It's such a process but I don't care. It just means I have to go back! :) I'll do some research online, check out some best seller lists, talk to some friends, THEN make a second trip to the store. I'm really excited about it...

She's got a big heart!!

Monday, February 2, 2009

Darbi had an echo done again on her heart today. It showed the left ventricles in her heart had become enlarged which means the heart is working harder, a result of the PDA being open. The plan is to have surgery on it but all of this will be decided when the doctors do their rounds tomorrow. We knew she would need this surgery but we were just hoping she would get a little bigger before it became a necessity. She's strong though and she's proved herself so far so we're hoping she'll do just fine with this surgery. Stay tuned for news from tomorrow!

Birthday Girl!

Sunday, February 1, 2009

Our sweet little girl is 1 month old today! If any of you would have told me at Christmas time where we would be right now, I would have slapped you. Once this whole thing started, I had no idea what one month would bring either. Knowing how far we've come in 31 days is amazing to me and the fact that we've made it to this point with so little complications is truly a blessing. Going to the NICU every day takes a lot out of me and it's hard to be there and talk with the different parents and babies who are going through trials that are so much worse than ours and Darbi's. It's a very humbling experience but we thank our Heavenly Father every day that he has blessed our family. Here she was this morning when we came to see her. Sorry the picture is a bit blurry. She's been doing so much better with her oxygen saturation and when we got in there to do her cares, she only dropped a little bit! She was pretty calm for us today!

Here is a picture of her little foot. Ignore the bruise. That was where the IV was last week that infiltrated. It's healing nicely and looks much worse than it is. Her little foot is so long though! I had to get a picture of her toes. Both Clint and I have "finger toes" (toes as long as fingers...) and apparently she inherited them. Our little monkey! She could peel a banana with those toes...

Happy 1 month birthday Darbi!!