Wait... did you just say PICC line??

Thursday, February 26, 2009

Our sweet girl has decided to rattle the cage again.. She sure does keep us on our toes.. She was doing so good.. the only thing unnaturally going into her was her breathing tube and her feeding tube. NOW.. we are back to a PICC line, an IV, a breathing tube, and a DRAINAGE tube... and NO feeding tube. :( One of her nurses was saying the other day she is looking a bit pale and that could be a sign of infection. They've done blood tests but her white blood cell count has been normal and not anywhere near the highs we would see with an infection. She not low on blood so she's in no need of extra...

What is wrong with her?? Well.. we don't know. They've done a blood culture and results will be back tomorrow night, antibiotics have begun and will continue for who knows how long, and they have stopped her feedings because her girth (the measurement around her belly) has increased by 1.5 cm in about a day (I think..). The x-ray showed her intestines were full of air and super swollen. They've stopped everything going in and she's getting suppositories to clear everything that might be coming out. The drainage tube looks just like her feeding tube and it goes to the same place but it is suctioning out everything in her tummy to make sure we've got it all. We are trying to avoid any perforations in her bowels by doing all of this. I would DIE if we got sent back to Primary's. We finally get her closer to home and all that work to just get sent back up there would be devastating. We are thinking the reason for all of this is because we went to fast at increasing her feeds. Once they fortified her milk to 26 calories per serving, she started spitting up a TON. The 26 cal would help her gain weight faster but is a bit harder on her gut.

Soooo.. Where does that leave us? We are going to wait and see how her body responds to us cleaning her out and we will watch her x-rays and when things start to look more normal, they will start feedings again.. but VERY slowly. Hopefully she's ok with the "infection" they think she has. The only thing that worries me is that it is not an infection but possibly something worse. I have no idea what worse is but we are praying that she's just a little overstuffed and needs a little break from food for a day or too.

The good news? She weighed 1155 today! That's 90 grams she gained today! It may not be super accurate because she still needed to empty her bladder but I'm going to pretend it's all real. 2 1/2 pounds!

4 Wisecracks:

The Alleman Family said...

Everything will be fine! She just wants to keep you on your toes! Thanks for the update- we will continue to keep your family in our prayers.

Aimee said...

Hoping and praying that this is just a minor bump in the road for you guys. Darbi is strong - she'll pull through!

Megan B said...

I was so disappointed to read this this morning. She's a little fighter and she'll turn this around. Please please keep us posted!

Nic and Ashley Haws said...

I'm so sorry. Your little Darbi is so amazing. She is such a fighter. My prayers are with you and with sweet Darbi. I hope and pray she doesn't end up back at Primary's.

All things considered, I hope you and your hubby are doing okay. Know that I am thinking of you.